I am not nearly the consistent blogger I planned to be. Not because I don’t have things to say, but because in totality they all sound so unreal and maudlin, I run out of ways to get my mind in a better place and move forward. As I go through the daily challenges and struggles of living with my coexisting conditions, there are a few things I’ve observed, noted, learned or need to learn:
1. Get a good doctor, especially a neurologist. Mine is amazing, and is baffled at how clueless some of my family is.
2. Does your family not understand your epilepsy? Aspergers? A-CC? Anxiety? Any of the above? Join the club. Talk to your doctor. Go on FB. Go on LinkedIn. Get the information you need. You are not wrong. they are.
3. Advice. Do you get a lot of it? Unwanted? My first question is , do you fully understand a seizure? Do you know what Adult Asperger’s Syndrome is like? Do you know about Agenesis of the Corpus Collosum? Until they can talk my talk, you don’t give me advice on how to walk. Try listening then give suggestions.
4. Relax. (I really suck at this one) Even when I’m relaxing, I’m not relaxing. I don’t know how to decompress or unwind. I need to learn how to meditate because I just get antsy and jittery, and have only thought about any past trauma when I’ve tried. That’s pretty counterproductive, I’m sure.
5. Yoga, Out of the question. I have no balance, no coordination. I even asked my chiropractor. He thinks it will be YEARS before I have the balance for that. Open to other ideas!
6. Headaches. I get migraine, cluster, tension and now sinus. I’m adept at deciphering them all. What do you do for yours? I’m looking for holistic things. Prescription stuff knocks me out, Exedrin makes me jittery.
7. Isolation. Yes, family again. I’m the pariah because I have all the above and it’s “nothing,” and ” it happens to everyone.” Cut out from everyone as that’s not my philosophy. Don’t make it yours either.